Interview with Jenny Teuten about being a sibling and carer to her autistic brother with learning difficulties

In Season 2, episode 20 of The Autism Podcast, James Gordon and Chris Papadopoulos interview Jenny Teuten about her experiences as a sibling and carer to her autistic brother with learning difficulties. Jenny opens up about the challenges she's faced over the years including how social stigma and misconceptions have impacted her and her family's life, how her childhood made her a more resilient and empathic person, the type of relationship she has with her brother now and her hopes for the future. She also outlines her main advice for other siblings in similar circumstances including the importance of challenging opinions that don't sit right with you and accessing support such as she has found with the London Autism Group Charity's monthly siblings support group. 

Jenny is very happy for anyone to contact her if you have any questions after listening to this. Her email address is hello@teutenhealing.com.

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Please like, follow and subscribe to our social media channels to support us! It makes a big difference to our small but wonderful Charity.

Please also leave us a review (hopefully positive ;) ) on Apple Podcasts - this is a huge help for us.

And please consider donating to the London Autism Group Charity if you are enjoying this podcast that we produce and able to (simply go to facebook.com/londonautismgroupcharity and click on the blue donate button - thank you!)

Our links:

London Autism Group Charity website: londonautismgroupcharity.org
Facebook page: facebook.com/londonautismgroupcharity
London Autism Group: https://www.facebook.com/groups/272747662886046/
Twitter: https://twitter.com/lagcharity
Instagram: https://www.instagram.com/lagcharity

The Autism Podcast is produced by the London Autism Group Charity. It is hosted by Dr Chris Papadopoulos and Mr James Gordon.

All Rights Reserved.

Interview with Emily from @21andsensory (exploring the negative and positive experiences of Emily‘s journey towards diagnosis)

In Season 2, episode 19 of The Autism Podcast, James Gordon and Chris Papadopoulos interview Emily from @21andsensory! Emily is an autistic adult who several years ago developed the @21andsensory blog (https://21andsensory.wordpress.com/) with the aim of educating and supporting people (and adults in particular) with sensory processing difficulties. Today, she runs a fantastic and very influential set of social media accounts (https://www.instagram.com/21andsensory/ , https://twitter.com/21andsensory, https://www.youtube.com/c/21andsensory) which focus on sensory related issues. She also produces her own podcast (https://open.spotify.com/show/76SifuR4fKLPldkaOcH693) which we are also excited to be featured within during at upcoming episode!

During the podcast, we discuss her journey towards diagnosis, and explore the many challenges and successes that she experienced along the way. This includes the challenges of schooling including the lack of support and understanding she received, the lasting toll this has had on her mental health, the misunderstanding as well as positive support from different professionals she has encountered, and the need for appropriate autistic-led mental health services. We also discuss her views on sensory processing issues including its stigma and misunderstanding, the need for normalisation and the challenges but importance of building sensory spaces (the latter of which is the focus of a research project called 'Sensory Street' that Emily is involved with: https://twitter.com/sensory_street).

Our links:

London Autism Group Charity website: londonautismgroupcharity.org
Facebook page: facebook.com/londonautismgroupcharity
London Autism Group: https://www.facebook.com/groups/272747662886046/
Twitter: https://twitter.com/lagcharity
Instagram: https://www.instagram.com/lagcharity

Please like, follow and subscribe to our social media channels to support us! It makes a big difference to our charity.

Please also leave us a review (hopefully positive ;) ) on Apple Podcasts - this is a huge help for us.

And please consider donating to the London Autism Group Charity if you are enjoying this podcast that we produce and able to (simply go to facebook.com/londonautismgroupcharity and click on the blue donate button - thank you!)

The Autism Podcast is produced by the London Autism Group Charity. It is hosted by Dr Chris Papadopoulos and Mr James Gordon.

All Rights Reserved.

Interview with Ginny Grant (on the topics of late diagnosis, mental health and eating disorders)

In Season 2, episode 18 of The Autism Podcast, James Gordon and Chris Papadopoulos interview Ginny Grant, an autistic advocate who is writer, editor and communications manager at Reframing Autism, an Australian based organisation run by and for Autistic people and their families and allies, who celebrate and nurture autistic identity.

We discuss Ginny's journey towards her late autism diagnosis, the mission of Reframing Autism, her challenges and experiences with mental health including post-natal depression, OCD and eating disorders (and how the latter two inter-connected), and her views about why autistic people might be more vulnerable to eating disorders. 

Links

Ginny's Twitter: https://twitter.com/virginialgrant 

Reframing Autism Twitter: https://twitter.com/ReframingAutism

Ginny's article title "Atypical anorexia: Facing an eating disorder, Autistically" - https://www.reframingautism.org.au/atypical-anorexia-facing-an-eating-disorder-autistically/

London Autism Group Charity website: londonautismgroupcharity.org
Facebook page: facebook.com/londonautismgroupcharity
London Autism Group: https://www.facebook.com/groups/272747662886046/
Twitter: https://twitter.com/lagcharity
Instagram: https://www.instagram.com/lagcharity

Please like, follow and subscribe to our social media channels to support us! It makes a big difference to our charity.

Please also leave us a review (hopefully positive ;) ) on Apple Podcasts - this is a huge help for us.

And please consider donating to the London Autism Group Charity if you are enjoying this podcast that we produce and able to (simply go to facebook.com/londonautismgroupcharity and click on the blue donate button - thank you!)

The Autism Podcast is produced by the London Autism Group Charity. It is hosted by Dr Chris Papadopoulos and Mr James Gordon.

All Rights Reserved.

Interview with Alan Morrison (on the topic of education and schooling for neurodivergent people, and the power of validation, diversity and kindness)

In Season 2, episode 17 of The Autism Podcast, James Gordon and Chris Papadopoulos interview Alan Morrison, an autistic man with rich insight and experience of the challenges and problems of the schooling and educational system for neurodivergent people. Alan talks about his childhood, the difficulties of school before he found teachers that inspired him, like the sociologist Michael Haralambos, who were rare and invaluable voices in the promotion of individuality, difference and diversity. Alan also talks about the story of his younger autistic brother and his educational transformation, how current curriculum and approaches still stifle individuality, and ideas and philosophies that could better promote diversity in today's schooling environments. We also talk about the unconscious moral mind, internal autistic honesty and the challenges of being assertive when integrity is being questioned. 

Please note that Alan also sent us a powerful story about an autistic boy he worked with during his teacher training. You can find a recording of this story, which is just a few minutes long and well worth also listening to, here: The Maze Story

Links

Alan's email address (he'd love to hear from you!): aj3morrison@yahoo.co.uk

Alan's Twitter: https://twitter.com/aj3morrison

London Autism Group Charity website: londonautismgroupcharity.org
Facebook page: facebook.com/londonautismgroupcharity
London Autism Group: https://www.facebook.com/groups/272747662886046/
Twitter: https://twitter.com/lagcharity
Instagram: https://www.instagram.com/lagcharity

Please like, follow and subscribe to our social media channels to support us! It makes a big difference to our charity.

Please also leave us a review (hopefully positive ;) ) on Apple Podcasts - this is a huge help for us.

And please consider donating to the London Autism Group Charity if you are enjoying this podcast that we produce and able to (simply go to facebook.com/londonautismgroupcharity and click on the blue donate button - thank you!)

The Autism Podcast is produced by the London Autism Group Charity. It is hosted by Dr Chris Papadopoulos and Mr James Gordon.

All Rights Reserved.

Interview with Kirsty Pellow on parenting children with different support needs, the battles for SEND provision and its toll on mental health

In Season 2, Episode 16 of The Autism Podcast, James Gordon and Tigger Pritchard (our special guest podcast interviewer!) interview Kirsty Pellow, who is herself neurodivergent, a carer to two boys with different needs, a SEND support worker and advocate.

We hear from Kirsty Pellow, and follow the steps of her own personal experiences learning about autism. She tells us about her journey as a carer, and how she learnt to trust her own instincts as a parent over the dismissal and denial of others. Searching for knowledge to help her son, this led to her pushing to get her son a referral for autism diagnosis, based upon the fascinating differences that he displayed and his various care needs.

Kirsty also describes her battles with the Local Authority to have her son’s educational needs met, her hard won successes, and the resulting high cost to her mental health. Kirsty explains her decision to Home Educate her son for a time, in order to address his co-occurring needs, and the way this better prepared him for school education in the long run. Also discussed is the sense of duty she felt to support other parents in winning SEND provision for their autistic children, and taking on an official role as a support worker. Finally Kirsty reflects upon learning about her own neurodivergence, the value of self-love and self-care.

Links

Kirsty's twitter: https://twitter.com/kirstypellow87

London Autism Group Charity website: londonautismgroupcharity.org
Facebook page: facebook.com/londonautismgroupcharity
London Autism Group: https://www.facebook.com/groups/272747662886046/
Twitter: https://twitter.com/lagcharity
Instagram: https://www.instagram.com/lagcharity

Please like, follow and subscribe to our social media channels to support us! It makes a big difference to our charity.

Please also leave us a review (hopefully positive ;) ) on Apple Podcasts - this is a huge help for us.

And please consider donating to the London Autism Group Charity if you are enjoying this podcast that we produce and able to (simply go to facebook.com/londonautismgroupcharity and click on the blue donate button - thank you!)

The Autism Podcast is produced by the London Autism Group Charity. It is hosted by Dr Chris Papadopoulos and Mr James Gordon.

All Rights Reserved.

Interview with Julie Caitlin Brown (on the topics of autistic sci-fi fandom, stigma, inclusion, self-acceptance and compassion)

In this episode, Chris and James speak with American TV, film and stage actress and producer Julie Caitlin Brown. Julie, who is also a musician and coach, is very well known for her role as Na'Toth in the first and fifth season of the science fiction television series Babylon 5, and for various guest star appearances in Star Trek: The Next Generation and Star Trek: Deep Space Nine.  She has also worked on many other shows including Becker, JAG, Raven, Sliders, and Beverly Hills 90201, among others. 

We speak with Julie about her own experiences of autism, adversity, why hopeful sci-fi often resonates with autistic and neurodivergent people, the stigma of autism and difference more broadly, and the importance of inclusion, self-acceptance and compassion to oneself and others.

Links

Julie's website: https://juliecaitlinbrown.com/about-julie/

Julie's instagram: https://www.instagram.com/juliecaitlinbrown/

Julie's facebook: https://www.facebook.com/JulieCaitlinBrown

Julie's twitter: https://twitter.com/JulieCaitlinB

Other links:

London Autism Group Charity website: londonautismgroupcharity.org
Facebook page: facebook.com/londonautismgroupcharity
London Autism Group: https://www.facebook.com/groups/272747662886046/
Twitter: https://twitter.com/lagcharity
Instagram: https://www.instagram.com/lagcharity

Please like, follow and subscribe to our social media channels to support us! It makes a big difference to our charity.

Please also leave us a review (hopefully positive ;) ) on Apple Podcasts - this is a huge help for us.

And please consider donating to the London Autism Group Charity if you are enjoying this podcast that we produce and able to (simply go to facebook.com/londonautismgroupcharity and click on the blue donate button - thank you!)

The Autism Podcast is produced by the London Autism Group Charity. It is hosted by Dr Chris Papadopoulos and Mr James Gordon.

All Rights Reserved.

Interview with autistic author Cameron Straughan (employment discrimination, misconceptions around autistic humour and more)

Chris and James interview Cameron Straughan, an autistic Canadian author, photographer, film-maker and teacher. 

Cameron, who resided in many years in the UK, talks through his autism journey including his youth and diagnosis later in later, experiences and views regarding the challenges of employment, and discuss some of the main challenges and discrimination issues faced by the autistic population and what needs to change for progress to occur. He also talks through his love of surreal and absurd comedy and humour, how he uses humour as a key coping mechanism for his own wellbeing, the offensive misconception of autistic people not understanding humour, his latest novel, 'The Surreal Adventures of Anthony Zen', and much more!

Links:

Website: https://cameronstraughan.com/
Goodreads.com: https://www.goodreads.com/author/show/8417641.Cameron_A_Straughan
Amazon: https://www.amazon.co.uk/Cameron-Straughan/e/B00E5YA688/
London Autism Group Charity website: londonautismgroupcharity.org
Facebook page: facebook.com/londonautismgroupcharity
London Autism Group: https://www.facebook.com/groups/272747662886046/
Twitter: https://twitter.com/lagcharity
Instagram: https://www.instagram.com/lagcharity

Please like, follow and subscribe to our social media channels to support us! 

Please also leave us a review (hopefully positive ;) ) on Apple Podcasts - this is a huge help for us.

And please consider donating to the London Autism Group Charity if you are enjoying this podcast that we produce and able to (simply go to facebook.com/londonautismgroupcharity and click on the blue donate button - thank you!)

The Autism Podcast is produced by the London Autism Group Charity. It is hosted by Dr Chris Papadopoulos and Mr James Gordon.

All Rights Reserved.

Interview with Katya Balen and Miranda Prag (founders of Mainspring Arts!)

In Season 2, Episode 13 of The Autism Podcast, Chris and James interview the two founders of Mainspring Arts, Katya Balen and Miranda Prag!

Mainspring Arts is an innovative organisation that works across artistic disciplines and have over the years since it was founded in 2015 supported and provided many opportunities to many neurodivergent people (some of whom you will be hearing directly from in upcoming episodes!). They do this by facilitating workshops to develop participants' skills, providing mentoring by industry leaders, and producing publications, performances and showcases. They aim to promote our participants' work to all audiences, with the ultimate aim of mainstream representation of neurodivergence in the arts. They strongly believe that neurodivergent people should have the opportunity to represent their own voices and experiences.

During the episode, Katya and Miranda explain what led to the organisation being founded, the misconceptions and lack of representation that they wanted to help push back on, the work that the organisation has done to date, future plans and more!

Links:

Website: http://www.mainspringarts.org.uk/

London Autism Group Charity website: londonautismgroupcharity.org

Facebook page: facebook.com/londonautismgroupcharity

London Autism Group: https://www.facebook.com/groups/272747662886046/

Twitter: https://twitter.com/lagcharity

Instagram: https://www.instagram.com/lagcharity

Please like, follow and subscribe to our social media channels to support us! 

Please also leave us a review (hopefully positive ;) ) on Apple Podcasts - this is a huge help for us.

And please consider donating to the London Autism Group Charity if you are enjoying this podcast that we produce and able to (simply go to facebook.com/londonautismgroupcharity and click on the blue donate button - thank you!)

The Autism Podcast is produced by the London Autism Group Charity. It is hosted by Dr Chris Papadopoulos and Mr James Gordon. All Rights Reserved.

Interview with Abby Brooke, an autistic advocate based in Kenya and lead of the ‘Walking Autism’ initiative

In Season 2, Episode 12 of The Autism Podcast, Chris and James interview Abby Brooke, an autistic advocate based in Kenya and lead of the 'Walking Autism' initiative.

During the episode, we hear all about Abby's fascinating journey towards diagnosis and self-acceptance, the aims and importance of her Walking Autism initiative, and some of the key issues and challenges facing the autistic and wider autism community in Kenya, including particular stigma issues and challenges accessing support.

If you are enjoying our podcast and have found it useful to you, please consider leaving us a review on Apple Podcasts or wherever else you get your podcasts as they really help us a lot in expanding our audience.

Links:

Abby's Walking Autism website: www.walkingautism.co.ke

London Autism Group Charity website: londonautismgroupcharity.org

Facebook page: facebook.com/londonautismgroupcharity

London Autism Group: https://www.facebook.com/groups/272747662886046/

Twitter: https://twitter.com/lagcharity

Instagram: https://www.instagram.com/lagcharity

The Autism Podcast - Livestream interview with Jo Grace & Becky Lyddon on sensory processing (with a focus on toileting & eating related sensory issues & coping during Covid-19)

In Episode 11 of Season 2, Chris and James interview sensory specialists Jo Grace and Becky Lyddon (founders of the Sensory Projects and Sensory Spectacle respectively), as part of another recent livestream episode that the London Autism Group Charity have been running to support the wellbeing of the autistic and wider autism community during the Coronavirus / Covid-19 pandemic. 

During the livestream Jo and Becky answered many audience questions which led to an in-depth and fascinating discussion around the sensory world, in particular however on the differences between sensory impairment and sensory difficulties, the connection between toileting issues and sensory processing, including the role of interoception, the connection between eating and sensory processing, and advice on how to cope with sensory issues and boost wellbeing during Covid-19. To watch the full video of this interview, and also all of our other Livestream interviews, please visit Facebook.com/londonautismgroupcharity/videos

If you are enjoying our podcast and have it useful to you, please consider leaving us a review on Apple Podcasts or whereever else you get your podcasts as they really help us a lot in expanding our audience.

Links:

Jo Grace's Sensory Projects website: http://www.thesensoryprojects.co.uk/

Jo's Twitter:https://twitter.com/jo3grace

Becky Lyddon's Sensory Spectacle website: https://www.sensoryspectacle.co.uk/

Becky's Twitter: https://twitter.com/beckylyddon

Sensory Spectacle Twitter: https://twitter.com/SensorySp

Sensory Spectacle Facebook: https://www.facebook.com/sensoryspectacle/

London Autism Group Charity website: londonautismgroupcharity.org

Facebook page: facebook.com/londonautismgroupcharity

London Autism Group: https://www.facebook.com/groups/272747662886046/

Twitter: https://twitter.com/lagcharity

Instagram: https://www.instagram.com/lagcharity

The Autism Podcast - Interview with Joan Pons Laplana on the topic of Neurodiverse Nurses

In Season 2, episode 10, Chris and James interview Joan Pons Laplana, an autistic nurse in the NHS leading a major new initiative called 'Neurodiverse Nurses' which aims to promote the inclusion and acceptance of neurodiverse nurses in the NHS.

In this episode, we speak to Joan, about the initiative and its importance, particularly in relation to leveraging the abilities and strengths of such nurses, his own personal experiences of autism, his struggles with mental health, and his work on the front line in fighting Covid-19.

Joan, who was named Britain's nurse of the year by the British Journal of Nursing is a true autistic hero, and I'm sure you'll enjoy listening to him.

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Links:

Neurodiverse Nurses Twitter: https://twitter.com/ndnursesuk

Neurodiverse Nurses website: ndnursesuk.org

Joan's Twitter: https://twitter.com/RoaringNurse

More information about the initative: https://www.nursingtimes.net/news/workforce/bid-to-launch-new-support-network-for-neurodiverse-nurses-09-03-2020/

London Autism Group Charity website: londonautismgroupcharity.org

London Autism Group Charity public Facebook page: facebook.com/londonautismgroupcharity

London Autism Group Charity twitter: twitter.com/lagcharity

The Autism Podcast - Livestream interview with Tigger Pritchard on the topic of PDA (Pathological Demand Avoidance)

In Season 2, episode 9, Chris and James interview Tigger Pritchard, an expert in Pathological Demand Avoidance, as part of another recent livestream episode that the London Autism Group Charity have been running to support the mental health of the autistic and wider autism community during the Coronavirus / Covid-19 pandemic. 

In this episode, we talk about the work Tigger has been involved with, what PDA means, the importance of understanding what demands are and how avoidance of demands is frequently entirely rationale, reasonable and sensory-based, methods to reduce demands, and how to manage demand reduction and management during Covid-19, and more.

To access and participate in future livestream episodes, in which we talk with experts about mental health and coping during covid-19 among the autistic and wider autism community, please visit our public facebook page which is www.facebook.com/londonautismgroupcharity. There you will also find the video recordings of past episodes which you can also access at our youtube channel.

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Tigger is an Autism & Pathological Demand Avoidance Consultant & trainer at Tiggertraining. He is a champion for the National Autistic Society in Cornwall has been running a vital campaign to engage with local businesses and thereby increase the Autism friendly services in Bodmin Cornwall. https://www.linkedin.com/in/tigger-pr... He also created and runs the Autism Coffee Shop Facebook page for interested people to learn and share information, articles on Autism, PDA and related areas. https://www.facebook.com/Autisminfoma... With over 30 years experience, he is a leading expert in the co-occurring condition Pathological Demand Avoidance and has also worked closely with the PDA Society.

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Links:

Charity website: londonautismgroupcharity.org

Facebook page: facebook.com/londonautismgroupcharity

London Autism Group: https://www.facebook.com/groups/27274...

Twitter: https://twitter.com/lagcharity

Instagram: https://www.instagram.com/lagcharity